Did you know that your experience as a cancer patient, and especially your opinions about treatments and side effects, can help shape the future of cancer treatment? The development of new drugs and treatments for cancer is a complex process, but as always, the ultimate goal is to develop better treatments with improved health and quality-of-life outcomes. To get keener insight into patient needs, it’s becoming more common for pharmaceutical companies to engage patients in the earliest stages of their research and development (R&D) process. Patient engagement at this stage typically involves participating in interviews or surveys in which patients are asked about their experiences with their diagnosis and treatment.

Playing an important role in reducing the incidence, morbidity, or mortality of cancer isn’t necessarily limited to patients. Sometimes, it is the experience of survivors, caregivers, or family and friends that can help shape the future of cancer prevention, detection, and treatment.

HNCA occasionally partners with research organizations regarding studies related to oral, head and neck cancer. When we do, you may have the opportunity to influence the development of future treatments that will benefit cancer patients and their families for years to come.

Active Research


Men Offering Understanding of Throat HPV (MOUTH)

Johns Hopkins researchers are seeking male volunteers, ages 30 and older, who have performed oral sex on more than one partner in their lifetime, men and women with history of anal or genital dysplasia or cancer, or partners of patients with HPV-related cancer (head and neck, genital or anal). This study will help researchers understand markers for oral HPV infection and may help to develop better screening for oropharyngeal cancer. You will complete a survey and provide an oral rinse, blood, saliva and urine samples.

For More Information

Principal Investigator: Dr. Gypsyamber D’Souza
JH SOM eIRB#: IRB00119537

1-866-792-HNCA (4622)




I had no idea that HPV could cause head and neck cancer. I am an advocate for everyone I know. I don’t want them to experience what I and my family experienced because we did not know about this sexually transmitted virus.Tina O’Dell
Survivor of HPV-Attributed Stage III Squamous Cell

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