Did you know that your experience as a cancer patient, and especially your opinions about treatments and side effects, can help shape the future of cancer treatment? The development of new drugs and treatments for cancer is a complex process, but as always, the ultimate goal is to develop better treatments with improved health and quality-of-life outcomes. To get keener insight into patient needs, it’s becoming more common for pharmaceutical companies to engage patients in the earliest stages of their research and development (R&D) process. Patient engagement at this stage typically involves participating in interviews or surveys in which patients are asked about their experiences with their diagnosis and treatment.

Playing an important role in reducing the incidence, morbidity, or mortality of cancer isn't necessarily limited to patients. Sometimes, it is the experience of survivors, caregivers, or family and friends that can help shape the future of cancer prevention, detection, and treatment.

HNCA occasionally partners with research organizations regarding studies related to oral, head and neck cancer. When we do, you may have the opportunity to influence the development of future treatments that will benefit cancer patients and their families for years to come.

Active Research

Help Us Better Understand Head and Neck Cancer with Pinpoint Patient Recruiting

Pinpoint Patient Recruiting is searching for people to participate in a market research study designed to gather information about people's experiences with head and neck cancer. If you or someone you love has been diagnosed with stage III or stage IV localized head and neck cancer within the last five years you may be eligible to participate in a series of activities (including an online journal and virtual interviews) and be paid up to $400 for your time and participation. You must be a US resident to participate.

To find out if you are eligible to participate, fill out this form or contact Kathryn Goodfellow at kathryn@pinpointpatientrecruiting.com.


Cutaneous Squamous Cell Carcinoma Paid Study with Global Patients

We are currently looking for adults in the US diagnosed with Cutaneous Squamous Cell Carcinoma with a lesion surgically removed from the HEAD or NECK in the past 3 months to participate in a paid interview study.

Study participants will be invited to attend a telephone interview that will last approximately 60 minutes in total. They will need to provide a confirmation of diagnosis.

In appreciation of their time, each participant will receive 135USD in the form of a virtual Visa Card upon completion of the study. For more information, please contact me at noelia@global-patients.com

Principal Investigator: Global Patients


Considerations in Oral Cancer Surgery

Your opinion can help make a difference in the future of head and neck cancer treatment. This survey will help academic researchers answer a critical question about what quality of life concerns are most important to patients as they work to determine what type of surgical option might be best for intermediate sized oral cancers requiring surgery.

Principal Investigator: Medical College of Wisconsin


Men Offering Understanding of Throat HPV (MOUTH)

Johns Hopkins researchers are seeking male volunteers, ages 30 and older, who have performed oral sex on more than one partner in their lifetime, men and women with history of anal or genital dysplasia or cancer, or partners of patients with HPV-related cancer (head and neck, genital or anal). This study will help researchers understand markers for oral HPV infection and may help to develop better screening for oropharyngeal cancer. You will complete a survey and provide an oral rinse, blood, saliva and urine samples.

Principal Investigator: Dr. Gypsyamber D’Souza
JH SOM eIRB#: IRB00119537

1-866-792-4622 (HNCA)


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I still struggle some days, and the months after my diagnosis were the most trying, difficult, and painful of my life. But my medical team was amazing. My community took care of me. And upon reflection, I have fond memories of the strong friendships I have and the power of family.Ryan Gainor
Stage IV Tongue Cancer Survivor


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